August
19, 2018, was the most painful day of my life when all my dreams
shattered. It was six months before my wedding and instead of planning my
wedding, I and my fiancé were going around Hospitals in Dubai.
I was taken to the emergency room around 3am at Aster
Hospital in Dubai. My stomach was severely aching as if I was dying. I was
continuously having loose motions like never before. I did some urine test and
blood tests and was given prescriptions for food poison and they released me.
The next day evening again I was in deep pain and no medicine would help so I
was rushed to the hospital. I was again asked to do a urine test and Sonography
of the Upper Abdomen. The result said UTI.
Even after taking medicines for a week, the symptoms didn't
go away. I went to Al Noor Polyclinic where I was again asked to do
Blood tests, Urine culture thrice, urine test twice, PAP Smear examination (my
nightmare), Sonography of Pelvis (TVS), test for blood sugar, and Glucose
Tolerance Test. After being checked by two GPs and a gynecologist they gave up
after a month and said all my tests were clear and there was nothing wrong in
the tests. The Gynecologist gave me emotional support and suggested that I see
a good Urologist in Unicare Hospital.
The Urologist gave me a prescription of three months for Overactive
Bladder and asked me to see a gynecologist. It was my breaking point
because every day was a battle and I couldn’t perform well at work because it
requires a lot of hard work as it was a busy season. I went to her and she
asked me to get the medication for 9 months and I gave up. I tried all sorts of
diet, homeopathy and cranberry syrups as well. I also went through a tough time
when I cried every night and my vision would turn blur and would feel so weak
and cold all the time. With a heavy heart and crying every night my fiancé and
I decided it would be best for me to quit the job which I loved the most.
November 20, 2018, I flew
back to Nepal and rushed to Medicare National Hospital and Research Centre
Ltd. The gynecologist there again asked me to do urine culture, urine test , and PAP smear test. Then she gave me medicines for urine infection and some
ointments for pain relief. However, the feeling of heaviness, burning, frequent
urination and whole-body pain wouldn’t go away. Finally, I was again sent to an
urologist who kept me under medication for a month and then got admitted at the hospital for 7days. He also performed a cystoscopy without any
painkillers. He also suggested me some medicine which I had to import from India.
But nothing worked. Thankfully, throughout this process my fiancé supported me
and we performed our wedding ceremony.
Finally, a close family member suggested me to see a doctor
at Apollo hospital, Delhi.
March.25.2019 I went with my family to
see Dr. Rajesh Taneja Who is genuinely a kind and courteous person
listened to my woes and trauma. He asked me to do so many tests like X-ray,
urine routine and microscopy, Aerobic culture and sensitivity (urine), CBC with
ESR, etc. After the result came I was finally admitted for Cystoscopy
and Bladder Biopsy. Then, he explained to me in detail what might have had
happened with me. He said it was Interstitial Cystitis. He said the
symptoms can last longer and medication is also for a long time, I was
devastated. But the doctor said it was a normal disease for many people and
asked me to join a group to see so many other people like me. Finally, I could
see so many people out there who could feel what I was feeling throughout the
whole year. Finally, I got the hope from Doctor and Interstitial Cystitis India
WhatsApp group who gave me and my husband hope that everything will be normal
soon and one day we will be together and I could eat what I want and go
where I like.
I don’t know why after cystoscopy in Nepal they couldn’t
find my problem. Maybe the lack of updated knowledge in them or because of the
un-updated technology we have. I came to know about some ladies who are having
the same symptoms as me go to Shaman (Jhakri). It is a myth But I also
went to temples and shaman to check if I was cursed because of the pain and
suffering and rushing to washroom every hour I had no hope. I saw in a long
queue of people in Homeopathy with others who were seeking help with the similar
condition of mine. Even when I was in Dubai no doctors gave me any proper
result or any proper food diet to minimize my pain. I don’t know if it is due
to lack of information or awareness about this condition of Interstitial
cystitis but why it took me so long time and so many hospitals to find about
it. The big question for me is what is the precautions and how did it happen to a person like me who is always hygienic and why me??????
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