Tuesday, October 3, 2023

Interstitial Cystitis and Normal Cystoscopy Results

 Understanding Cystoscopy

Before we explore this topic further, let's grasp the basics of cystoscopy. In the diagnosis and treatment of interstitial cystitis, most doctors prefer to perform cystoscopy with hydrodistension. It's a medical procedure involving the insertion of a cystoscope—a thin, flexible tube with a camera—through the urethra into the bladder. This procedure allows doctors to visually inspect the bladder and urethra for abnormalities like inflammation, tumors, or signs of infection.



The Confusion Surrounding IC/BPS Diagnosis

The term "confusion" frequently emerges in the medical discourse on interstitial cystitis/bladder pain syndrome (IC/BPS). The diagnostic role of cystoscopy has been a matter of debate, with conflicting opinions from experts. Some argue that cystoscopy is essential for diagnosis, while others believe it's necessary only in complicated cases. The lack of a standardized protocol adds to the uncertainty, with variations in the approach even among reputable organizations like the European Society for the Study of Interstitial Cystitis (ESSIC) and the American Urological Association (AUA). The ESSIC guidelines and AUA recommendations are similar but not the same. 



Hunner's Lesions and Glomerulations

During a cystoscopic evaluation for IC/BPS, doctors often look for Hunner lesions and glomerulations. However, Hunner lesions, occurring in only 10-15% of patients, are not prevalent. While cystoscopy is beneficial in diagnosing these lesions, it may not provide conclusive results for patients without them.

Complexity of Interstitial Cystitis

The complexity of interstitial cystitis contributes to the challenge of obtaining clear diagnostic markers through cystoscopy. Unlike some conditions, IC may not leave visible signs during a routine cystoscopic examination. The condition may involve deeper layers of the bladder wall or stem from nerve-related issues that aren't easily detectable through standard procedures.

The Role of Hydrodistention

In cases where symptoms persist despite a normal cystoscopy, doctors may opt for hydrodistention. This involves filling the bladder to reveal hidden signs of inflammation and provides a more comprehensive view of the bladder's condition.

Empowering Patient Experiences

Patient experiences are crucial in the realm of IC. It can be disheartening when cystoscopy results come back normal, yet the pain and discomfort persist. If you find yourself in this situation, don't hesitate to communicate your concerns with your doctor. Seeking support and understanding is key, and organizations like ours are here to help.

You can email us at icindiaorg@gmail.com 

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